Acrodermatitis Continua of Hallopeau

[auntgigi89]

I have been dealing with this for about 5 years. At first I didn't know what it was. This past year it has gotten very bad and I now have a name for it.
i use creams, lotions, oils and foot baths.
This is very painful and unpleasant. I am avoiding the Enbrel because I am a nurse and it could cause problems with my job and I am not personally prepared to take this route yet. I am just touching base and hoping someone can give me a little insight here of things to avoid or to try that may help this.
I see my derma tologist again tomorrow, but to be honest I am starting to get discouraged with him to and about to request that he send me elsewhere. He is very good and helped me where the leading dermatologist in our area.
Anyway any input or words of encouragement would be welcome.

[RichJ]

hi auntgigi89,
sorry that i can't help much but welcome to the p family. you eill met some of the wonderful people on here and will find alot of great info. welcome and nice to meet you. maybe some one will come through and help with your ?

try and have a good night all

richard

[wildflowerAnn]

Hello Auntgigi89,
The terms for your diagnosis are a mouthful! Had to Google the words to know what they meant. I have generalized pustular psoriasis and have taken immunosuppressive systemics plus topical steroids to control the erythma and formation of pustules. Several members here have hand and feet pustular psoriasis and maybe they can provide you with some information on what has and hasn't worked for them. One member found relief using Keflex. I would post links to her posts if I knew how. Hopefully she will see this and tell you how she got relief after many years.
Good luck with finding a treatment plan that works, and welcome.
Ann

[grannyfranny]

Auntgigi89, and welcome to this forum.

I am the person Ann mentioned. I am still doing great. I'll give you some links to look at and maybe you'll find something to help you.

None of the psoriasis drugs ever helped me and some of then made me get worse. Enbrel, MTX, Soriatane and many others. I tried everything for 42 years before getting relief.

http://www.psoriasis.org/forum/showthread.php?t=20993

http://www.psoriasis.org/forum/showthread.php?t=16816
http://www.psoriasis.org/forum/showthread.php?t=16844

Here is a link to an article that is interesting.
http://www.whonamedit.com/synd.cfm/212.html

Hope you find something that will help you. Let us know if you have questions and someone will try to answer.

[ouchyk]

I understand raptiva works well for hand and foot psoriasis. choices are never easy.

best wishes.

Karen

[auntgigi89]

Thank you all for the encouragement. Granny I will be talking to my dermatologist about long term antibiotic therapy. Your feet look great.
I now have a little more hope. I will let you know how it goes.

[ktdogs6]

My heart goes out to you especially since you do nursing. If you should decide to go with the biologics, they are quite safe and work well in a good percentage of the population with psoriasis. I worked in medicine and we all know that every adverse reaction has to be recorded in dealing with medicines, from aspirin to any other medication.

I think one of the most serious decisions you have to make is how you want to continue to function. See your dermatologist and make decisions based on what you want to do with the rest of your life. One of my dermatologist recommended a drug I did not want to take. I am now enrolled in a clinical trial. I not only want to help myself (plaque P on the hands and feet), but I want to help others who may have P!

Bless your heart, honey! Nurses are the best!

[grannyfranny]

Just a reminder,,,,,some people have horrible flares when getting off the biologic drugs. A flare with pustular p on feet is extremely painful.

[auntgigi89]

Has anyone had success in getting rid of acrodermatitis/ pustular psoriasis and not having it come back? Is this wishful thinking on my part?

[grannyfranny]

Hi,
I have not had many pustular places since starting the antibiotic. When I do get one it is already turning brown before I see it,,,,,,,they don't hurt. I have not seen a new place in a few weeks. Only on my feet,,,,,,nothing on my hands since 2005.

I can wear REAL shoes and walk enough to do my shopping, etc. The osteoarthritis in feet does limit me a little so I do pay attention to hao much I am on my feet at one time.

[cakp12]

Hi Granny,
I was just wondering if you have had anything (infections)that required you to be on other antibiotics since you started the Keflex- since I'm pen allergic I'm already limited and cautious to take one longterm that will then be less effective when I might need it for a major infection.
Glad you are doing so well!!!

[grannyfranny]

Hi Carol,
Once I got a sinus infection and my doc took me off Keflex and put me on Amoxicillin for a week and then right back on Keflex. I think I have been healthiest since I've been on Keflex than any other time for about 20 years.
In 2006 at Christmas we were in Alabama with our son and his family. Two kids had strep, one had pnuemonia and DH, son and DIL all got sick. I didn't. I haven't even had a cold.
I am lucky that none of the antibiotics make me sick and I'm not allergic.

[ktdogs6]

Hi Granny! I live not too far from you.....in Clemmons. I'm committed to do this clinical trial I'm on...placebo vs biologic, but when I complete the trial, I'm going to investigate antibiotic therapy. I have plaque P on hands and one foot. The hands have been very painful this winter, what with all the cracks and peeling. I can deal with the one foot....soft socks, bandaids and tennis shoes. Wearing anything else is out of the question.

I am so glad you have found something that helps you! Thanks for sharing with us!

[grannyfranny]

Hi Ktdogs,
Are you in the study at Wake Forest? They do have a good derm department there. Their doctors are good. I don't know if an antibiotic will work for any other kind of p since I only had the pustular.

My best friends live in Clemmons and we get out there about once a month or so.

[RichJ]

hi granny,
im glad that your hands and feet are doing good. my are still live abowl and i hope they stay that way and do i.

have a good day my friend and it's getting warmer out side. yeah yeah and yeah

richard

[GitOverIt]

and don't forget Crocs....they are so comfortable for the feet! I think they would be better than tennis shoes!?

I just found more Crocs at Costco for $21.59 (or some odd cents) I bought, yet, another pair this time lime green
For Christmas my daughter bought her dad the fur-lined type...he loves them...wears them all the time!