Palmar-Plantar Pustular and Acropustulosis

[AnnaBucy]

Anyone out there have one or both of these conditions. I have had (wrongly diagnosed and treated) acropustulosis on my finger tips and toes for my whole life and have recently developed PPP on the bottoms of my feet and the palms of my hands. I don't like the idea of taking Embrel. What have you tried that helped ease the pain and/or speed recovery?

Also, what do you think of parafin dips like you can get at a nail salon? Helpful, hurtful, no comment?

ANNA

[grannyfranny]

Hi Anna,
I have Pustular Palmar-Plantar. Enbrel did not help me and I had a horrible flare when I stopped it. It is just a chance you would have to take. What helps me the most is staying off my feet. I use a wheelchair or a scooter a lot. That really helps with the cracking skin. I also use Lidoderm patches and Thermacare Heat wraps.
Right now I am taking MTX to try to calm down what Enbrel did. I am seeing some improvement. Hopefully, I can calm down and get off MTX eventually.
It is a hard thing to live with. I have had it for 40 years and the worse time I have had was when getting off Enbrel and a long time ago-Prednisone.

[cakp12]

I have a home unit that I use, first I rub on tons of moisturizer then dip( it's a bit uncomfortable at first quite warm) three layers of wax then wrap in the baggies that come with it- sometimes I sleep with them on- My daughter loves the dips even though she dosen't have P- We make it a ladies night!! It is easier if you have another person to wrap your hands in the baggies. Then we sit around a giggle at how silly we look!

When I had my first outbreak as a child (was diagnosed as Athletes foot) I soaked my feet in Potassiun Permanganate which dyes your skin brown- so I wore socks all the time to hide that-I can remember playing twister with friends and being the only one who wouldn't take off my socks

[AnnaBucy]

I have used Ultravate for years and kept it wrapped--it was only on my finger tips and toes at the time. My doc gave me Elidel which did nothing. When the pustular stuff started showing up on my palms and then the bottoms of my feet I got freaked out. It took a while to get to the new derm, but I think he is going to help. He put me on an antibiotic, Dovonex ointment and something that starts with a C that I cannot remember at the moment. They feel better--I guess we will see soon.

They advised against the parafin dips until my skin is healed. I have to agree at the moment. I think I am going to go back to the tanning salon for a few minutes a couple of times a week now that my hands are showing signs of healing.

ANNA

[bluwheeler]

I have acrop. Right now I'm getting ready to switch from methotrexate to cyclosporine. They haven't even mentioned parafin dips or uv treatment. Enbrel was mentioned, but my derm said they would rather I go for the cyclo. because enbrel wasn't tested on my type of p.