Talk about ways you can support your loved ones who have psoriasis and psoriatic arthritis, and discuss strategies and treatments to help both loved ones, and yourself, live with a chronic disease.
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Welcome to the Parents, friends and family forum. This forum is the place to discuss all issues relating to the support and treatment of a family member, spouse, child, or friend who has psoriasis or psoriatic arthritis. This includes strategies to help both your loved ones and yourself cope with a...
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The moderation team wants to remind everyone in the community of one the key points of our mission statement for this message board: The National Psoriasis Foundation is committed to maintaining a welcoming environment for all, no matter their treatment preferences, membership in the Foundation or...
I am horrified. He has it in his ears, around his ears and hairline in the back, shoulders and back. Around his neck, under his arms and between his legs. Oh and a few spots on his scalp. My ped. said he had heat rash. Keep him inside and keep him cool. Absolutely no sun, 9 days later, this...
My daughters school called today, she has head lice. Another wonderful piece of info that I really didn't need today (my youngest is running a fever and was up all night...) So now, I'm waiting for the derm to call back, because obviously we can't use any of the regular medications on her because...
My 7yo daughter has severe scalp psoriasis. Is there any non-medicinal treatment to helping her scalp psoriasis? We tried putting baby oil to soften the scales but it only made the growth exponential. Has anyone experienced this? I heard tea tree oil works...but if baby oil didn't, would...
Each year on October 29th, we celebrate World Psoriasis Day—an international day of recognition for the people living with psoriasis and psoriatic arthritis. This year the international theme is Childhood Psoriasis: A challenge for all. Through World Psoriasis Day, we want to teach people...
does anyone know the chances of passing this on to your children? my mothers father had it extremely bad, my mom has it severely, and i have it mildly. I am currently 8.5 mos pregnant and concerned about giving this to my baby. I don't want her to come out looking like a cheetah! I also dont want...
Introducing PsoMe.org--the first website just for kids with psoriasis and psoriatic arthritis! Your child can connect with other kids, learn about their condition and feel confident in their skin! Visit the site with your child for educational pages on the disease in easy-to-understand terms;...
Both have been truly AMAZING to me! I can't begin to imagine not using them! I love them! Anybody else have luck with these?
I am writing to gain any experience, understanding and hope around this disease. My daughter, who is 6 was diagnosed yesterday with psoriasis, and I am scared and trying to learn as much as possible about what this is. The disease is on my husbands side of the family we recently found out. I...
Just wanted to share that we took my daughter to see Dr. Heng. My daughter is 10 years old. She began to get psoriasis a year ago...it spread to most areas of her body and she became very sad and self-conscious. I heard about this doctor on this site and decided I needed to book a plane ride,...
I am interested in finding a pen pal for my 9 year old little girl. Someone her age who has P that she could chit chat with. Was thinking email would be great. She was just diagnosed in January this year with guttate p. Anyone out there have a child that they would like to share emails addresses?
Hi, I'm Kathy. I live in Sorrento, FL. I'm new to this and I don't know what to do with my Ex. He is in so much pain, lost his job and just got a DUI last week. Our four kids and I just moved back in with him to help. He can't get out of bed in the A.M. Get up to go to the bathroom in the middle of...
Hello everyone. My name is Angela and I'm in Central Kentucky. I have a 9 year old son (today's his birthday!) who has juvenile arthritis. We are about 90% sure it is psoriatic due to the pits in his nails and family history. He is on 30mg of Enbrel, 20mg of Methotrexate (inj) and 2mg of folic...
Hi - Our son has had nail psoriasis symptoms for over 18 months - first one nail, then a new one about every two months. We've done the steroid tape, clobetasol cream, tazaroc cream, and now steroid injections. Does anyone have any good experiences/outcomes with these treatments? Thank you
Hi all... This group seems like a lot of help, I have just joined. I have some questions which I'm hopping someone can kindly answer. My mum developed some red spots on her chest about two months ago, at first she never paid any attention to it but the spots seem to get more and she has a few on...
Our son was diagnosed 2 days ago with psoriasis and turned 2 yesterday. I'm here as a scared mom looking for others in the same place. He has what the peds derm said was severe on his face and mild on knees and elbows. I'm scared as to what this means for him in the future... We are currently...
My son who is 20, has a bad case of Psoriasis, it's on his head, on his face, body etc. He has been dealing with this for around 2 years now. First broke out when he was being recruited for college baseball, I believe it must of been stress that triggered it. He has been to a couple of drs, and...
The Arthritis Foundation's nationwide event for families affected by juvenile arthritis will be held this year from July 29-August 1, 2010, in Philadelphia, PA. Learn more at: http://www.arthritis.org/2010-ja-conference.php
Anyone know about the use of vitamin D3 in children for P? My daughter is 7 and has guttate. Currently it is "manageable" but I worry that it won't be as she ages. It seems to be getting a little worse as she is getting older. I think she was diagnosed 3 or 4 years ago. I am interested in what...
hi y'all, some of you may have seen me posting in other forums about PsA but i also wanted to share more about myself here. i have P and PsA. i'm married to the man i know i was meant to spend my life with even though we go together like gas and oil or dynamite and a match. LOL we have two...
Hello, I am new here. My daughter was diagnosed with this today so as concerned parents we are trying to find out everything we can about this disease. Sometime in Feb. my daughter had strep throat. At the beginning of March we discovered some small red (rashy) spot on her back, stomach, arms. It...
Hi yall, New p sufferer here from MS...32,f, mom of 2 who has tried it ALL, done it ALL, and still suffering. Latest thing to try is phototherapy. Does ANYONE know or have a narrow band UV light they want to sell? I am sure my dr will prescribe one for me, but they are just so expensive through...
Hello my name is Elysia.. My daughter was recently diagnosed with psoriasis.. She had a bad rash on her face and chest that would come and go.. we would take her to the dr. and all she kept telling me was that it was Eczema and she was dehydrated, none of the treatments worked.. i had to ask her...
My boyfriend and I have been together for almost 6 months and when we met he only had a few spots of psoriasis on his body. Since November he has since been completely covered from head to toe with guttate psoriasis. It is so much better now then it was 3 months ago; he is seeing a dermatologist...
Tyler just had his 4 week follow up appointment since starting Enbrel. The appointment was on his 20th birthday and what a birthday present! His blood work was perfect! His SED rate decreased from 45 to 4 and his CRP decreased from 6.1 to .8. He feels and looks great. The only side effect he...
We are just a week into this diagnosis with my 2 year old. We are trying to become as educated as we can and learn what our options are. Right now what I am struggling with is the pity that I get when I tell people what he has...I don't want people to feel sorry for us, I want their support. How...
Hi All, Hoping someone could help me to figure this out. My daughter got poison ivy last wednesday and of course when you tell a child not to scratch, what do they do? Anyway, we are now in an outbreak of PI and it looks so bad on her stomach that I think that it is going to turn to P. I thought...
My son who as a baby as had skin problems and we were always told it was eczema and he would grow out of it. About two years ago he started to develop the callus like sores on his knees and this year he has start developing red sores (for lack of a better word) on his shins. We started seeing an...
Hi, I just wanted to introduce myself. My 3 year old was diagnosed about 5 months ago (originally with "sebo-psoriasis," the ped derm we saw recently said just psoriasis). It is mostly on her scalp but with some spots on her body, mostly her trunk. She has nail pitting as well. We've tried...
Are there chats or services for singles with psoriasis? Man there should be!! Ive never dated anyone with psrs like I have , but Ive thought about trying to find some info Anyone know?
I took my 3 year old to the doctor, they prescribed Fluouracil topical cream and carbinoxamin 1/2 teaspoon at bedtime. I am putting the cream on once a day and it is getting worse. Yesterday I put bandages on because when the sores seemed to be trying to heal she would pick at her scabs. today I...
I have been dating my boyfriend for almost 2 years now... I was the first person my boyfriend opened up to about having psoriasis. Recently he has really been having a hard time with it. His confidence has dropped significantly... Besides going to work he always stays indoors now. It saddens me so...
Hi all, my name is Elizabeth. In addition to being an adult sufferer of Psoriasis (and atopic dermatitis), I am a photographer in Michigan. I work in the background of a wonderful organization called the Littlest Heroes Project. It was started by an 18 year old named Felicia Reinhard. We match...
please anyone with advice for guttate psoriasis and tonsilectomies PLEASE CONTACT ME!!!!!! My daughter is 16 yrs old and actually is covered with guttate psoriasis, the doctors just tell us, in so many words or less.... get her with a therapist, so she can learn to deal with this curse, wouldnt...
Applications are now being accepted for Camp Discovery, a camp for children between 8-16 living with serious skin conditions that is ran by the American Academy of Dermatology. Ask your child's dermatologist for an application. The deadline is April 9, 2010. Fore more info about Camp...
Hello Everyone! My son, Tyler, was diagnosed with PA in Dec. 09. His dad and I have been learning all that we can about this disease so that we can support Tyler in any way that he needs. Tyler is the type of person who doesn't worry too much and just let's things roll off his back. I am so...
This goes out to all you: Spouses,Family,Friends who cope with thier loved one's Psoriasis.Thanks for seeing whats in the inside rather than the outside.You deserve a big "Thanks". I myself am very gratefull of the support I have recieved from Family and Friends.
Hi, My baby's outbreak began in July on her cheeks and now it covers almost her entire body. She's been to the pediatric derms and they offer only steroid creams, which we tried and did little to relieve and nothing to stop the spread. We are really interested in alternative approaches as well...
my son is now 9 and he is having patches on knees and elbows since he was 5. we r indian and living in UK. knee pacthes has got bigger slightly.the colour and appearance of lesions are continuosly changing from dark to red ,less scaly but itchy sometime cracking.i have applied clobetasole...
I just started dating a very nice man, the first since I got P and PA. When do I tell him I have P, the stuff he can't see?
Hi, I'm new to the message board and I have a (almost) 14 year old son who has Psoriasis. He currently has several spots on his scalp, 2 spots on his shoulders and one at the bottom of his back. His scalp is more severe than the spots on his torso. I'm glad to know that I can discuss it and get...
My doctor of almost 10 years told me that diet didn't play a factor in Psoriasis. He literally laughed at me and told me I "was on a fool's errand". I think the pictures speak for themselves. I still have a long way to go, but it is a drastic improvement. These pictures are from before I started...
Recently, I've been hearing more and more about the increased risk of mothers with psoriasis giving birth to children, who are later diagnosed with some form of autism. It's all terribly frightening. I have a 2.5 yr. old son who is healthy and well-adjusted, but it certainly makes me afraid for...
I am new to the board. I had my 3rd child 2 months ago and my P and PA are flaring. I had great results w/ Enbrel prior to conceiving- and wasn't too bad during my pregnancy either w/ out the Enbrel. The PA is the worst it has ever been and I would love to go back on the Enbrel if I knew it was...
We just found out that our 9 year old daughter has psoriasis. We were wondering if any one can help us with information. She has on on her eyes and wasn't told a lot about. If anyone can help it would be greatly appreciated.
my daugther is 8 and was dx with p over a year ago things are getting worse. She goes to a peds Derm and we have been doing different topical treatments on her it seems like we have to switch around often because her body gets used to all the topical treatments we use. my problem is her scalp is...
Im married i have P she does not .. We are at the point in life where the children are in the works God willing .. How much chance does my offspring have of being born with P .. is it a high rate or not ?
This is my first post. My 14 yr old daughter is losing her hair. The plaque is breaking down and her hair is falling out in clumps. She had her dance recital last night. Before her performance she was crying so hard about the bald spots that I wasn't sure she would go on. She did dance. I don't...
My 23 year old daughter has had over 100 degree temp. for about 7 days. She has already been to the Dr. once. She thought it was swine flu, and told her to call back if she wasn't better in a few days, as it might be a secondary infection. Well, she's taken the antibiotic for a couple of days and...
Very saddened to have to announce the passing of my true love, Shaun Somerville, on Oct.17th,2009 He suffered with P and PA for 7 years, and for the last two years, had Erythmodermic P. He enjoyed his drinks, it helped him thru his unbearable pain, but ultimately destroyed his liver. I...
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